A new drug shows that the price of hope is $750,000
Photos by Suzanne Kreiter/Globe Staff (left, center); Kim Raff/Special to the Globe (right)
The families of thousands of children who want Spinraza, a newly approved drug for spinal muscular atrophy, have faced hurdles ranging from slow ramp-ups at hospitals to resistance by health insurers spooked by the $750,000 list price for the first year.
This creation story began in a lab at the University of Massachusetts Medical School in Worcester.
A neurologist and his patient coordinator scramble to launch a Spinraza program at Johns Hopkins where 80 patients remain on a waiting list.
Conflicting interests in the health care industry make it difficult to reach a consensus on what to do.
Rise in HIV among drug users increases fears of new epidemic
Health officials are worried that young people, unschooled in safe injection practices, could spark an outbreak.
Boston Mayor Walsh said he signed the bill despite concerns about the ban’s impact on the city’s low-income residents and seniors. The ban goes into effect next fall.
An American soldier killed in an ambush in Niger with three comrades wasn’t captured alive by the enemy or executed at close range.
An organization that was part of President Trump’s transition team claimed Saturday that special counsel Robert Mueller III improperly obtained a trove of transition emails.
Senator Susan Collins says the tax reform overhaul now contains proposals she backed concerning state and local taxes, retirement savings and medical expenses.
Russian President Vladimir Putin called President Trump Sunday to thank him for a CIA tip that helped thwart a series of bombings in St. Petersburg, the Kremlin said.
Some attempts have failed, but the intensity of the president’s anti-Obama movement has never ebbed.
Authorities say a power outage at the Hartsfield-Jackson Atlanta International Airport has caused flights to be suspended.
Despite efforts to get him out of Bowdoin-Geneva, Natalino Gomes could not leave his neighborhood.