FROM THE moment their son was born, Mohammad and Alia Alhazmi knew something was wrong. He was too tiny. He needed a blood transfusion. Just one week into life, he had to have heart surgery.
Doctors in Saudi Arabia, the Alhazmis’ native land, suspected that the infant had Diamond Blackfan Anemia, a rare genetic condition that prevents the body from making red blood cells. But they couldn’t say for sure. They didn’t have access to the right kind of tests.