On Valentine’s Day 2013, Lise Stern got a call from the University of Miami, where her son Eitan was a freshman. She thought for a moment it might be someone soliciting donations for the school. But then a dean’s voice said: “There is no easy way to say this. Your son has passed away.”
Eitan Stern-Robbins was 18 when he died in bed in his dorm room, from something neither he nor his parents had ever heard of: Sudden Unexpected Death in Epilepsy (SUDEP). Eitan had suffered from epileptic seizures since age 11, but with medication had been able to limit them to every year or even two.