Fund-raiser will benefit youth with rare disorder

A fund-raiser has been scheduled from 7 to 9 p.m. March 7 at Faith Quest Community Church, 50 Central St. to benefit Connor Dirks, 13, a Stoneham resident who was diagnosed last year with Kleine-Levin syndrome, a rare neurological disorder. More commonly called Sleeping Beauty syndrome, the disorder causes the once avid hockey player to sleep excessively and adversely affects his demeanor. Treatment for the disorder is costly, with many expenses — including the costs of multiple tests — not covered by the family’s health insurance. According to Caroline Colarusso, a family friend who is helping to organize the event as outreach director for Faith Quest Community Church, the fund-raiser will be “a community event, with lots of local youths performing, from cheerleaders to guitar players and singers.” The event will feature a raffle. Anyone wishing to donate an item for the raffle is asked to contact Colarusso at 781-279-1197 or by e-mail at Those who cannot attend the fund-raiser and would like to support the family may send donations to the Connor Dirks Benefit Fund, c/o StonehamBank, 80 Montvale Ave., Stoneham, MA 02180.