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The Boston Globe

Health & wellness

Health

Cystic fibrosis patients losing a connection

With new guidelines urging them to stay apart, patients are forced to choose between community and isolation

Cystic fibrosis has not been easy for Katie Lockwood.

But, along with a regimen of chest physical therapy to keep the sticky mucus from building up in her lungs, frequent doctor visits, and the emotional burden of an uncertain future, the disease also brought with it a community. When she was 4, Lockwood spent a week at a summer camp just for CF patients. While growing up, she attended at least five CF fund-raisers each year, enjoyed annual ice-skating and dance parties to raise money for research, learned public speaking at a young age, even met actress Rosie O’Donnell.

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