Ipswich’s Jocelyn Duff, founder and executive director of CureCMT4J, was the June honoree of Science Channel’s monthly “Science Super Heroes” initiative.
Duff founded the organization after her 11-year-old daughter, Talia (right), was diagnosed in 2015 with Charcot Marie Tooth, Type 4J (CMT4J), a rare disease that is compared to a slower moving form of amyotrophic lateral sclerosis.
By supporting the advance of gene therapy research, the organization is hoping for a cure, According to a statement, the channel recognized Duff for “furthering science in her community and encouraging the next generation of innovators and problem solvers.”
For more information, go to curecmt4j.org.
David Rattigan can be reached at email@example.com.