Cost of drugs rises for chronically ill

US health law can mean hefty charges up front

MIAMI — Breast cancer survivor Ginny Mason was thrilled to get health coverage under the federal Affordable Care Act despite her preexisting condition. But when she realized her arthritis medication fell under a particularly costly tier of her plan, she was forced to switch to another brand.

Under the plan, her Celebrex would have cost $648 a month until she met her $1,500 prescription deductible, followed by an $85 monthly copayment.

Mason is one of the many Americans with serious illnesses — including cancer, multiple sclerosis, and rheumatoid arthritis — who are indeed finding relatively low monthly premiums under President Obama’s law.


But some have been shocked at how much their prescriptions are costing as insurers are sorting drug prices into a complex tier system and in some cases charging co-insurance rates as high as 50 percent. That can leave patients on the hook for thousands.

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‘‘I was grateful for the Affordable Care Act because it didn’t turn me down but . . . it’s like where’s the affordable on this one,’’ said Mason, 61, of West Lafayette, Ind., who pays an $800 monthly premium.

Before the federal health law took effect, Mason paid slightly more for her monthly premium on a plan that didn’t cover her arthritis or pain medications and some routine doctor’s visits.

Avalere Health, a market research and consulting firm, estimates that some consumers will pay half the cost of their specialty drugs under health overhaul-related plans, while customers in the private market typically pay no more than a third. Patient advocates worry that insurers may be trying to discourage chronically ill patients from enrolling by putting high-cost drugs onto specialty tiers.

Brian Rosen, senior vice president for public policy for the Leukemia & Lymphoma Society, said the group studied premiums and benefits for patients with blood cancer in seven states, including Florida, California, Texas, and New York.


They found 50 percent co-insurance rates for specialty drugs on several plans in Florida and Texas, while the highest co-insurance rates on California plans were 30 percent and in New York, co-pays were typically $70.

Under the law, insurers can’t charge an individual more than $6,350 in out-of pocket costs a year and no more than $12,700 for a family policy.

But patients advocates warn that those with serious illnesses could pay their entire out-of-pocket cap before their insurance kicks in any money.

‘‘The challenge is for the sickest patients, the ones that need access to these specialty drugs, the costs are going to come in most cases from that out of pocket cap . . . they are likely to hit that $6,350 ceiling and in some cases quickly,’’ said Rosen.

Insurers say prescription drugs are one of the main reasons health care costs are rising.


‘‘Spending on specialty drugs is growing rapidly. It’s unsustainable,’’ said Clare Krusing, spokeswoman for America’s Health Insurance Plans, a trade group that represents the private insurance industry.

Only 1 percent of prescriptions written in 2012 were for specialty drugs, but they accounted for 25 percent of the total cost of prescription drugs, according to a study by America’s Health Insurance Plans.

Insurers can generally choose to put whichever drugs they want into the specialty tier of a plan. Generic drugs for blood pressure or cholesterol typically fall into categories that require patients to pay less than $20 out of pocket.

But patients can end up spending significantly more when they pay for a percentage of a specialty drug’s cost. Two of the most frequently prescribed specialty drugs in recent years include the cancer drug Avastin, with an $11,000 average annual price per patient, or a hypertension drug such as Letairis, which costs $32,000 per year, according to health insurers.

Even before the Affordable Care Act took effect, insurers had increasingly begun requiring patients to pay a percentage of the drug costs instead of a flat copay, but analysts say patients often spend more for their prescriptions in plans offered under the health law because of the co-insurance.

‘‘There’s a significant percentage of plans who are using co-insurance of 50 percent or higher,’’ said Caroline Pearson, who tracks the health care overhaul for Avalere Health, which studied plans in 19 states. ‘‘It is generally a lot higher than what we see in private insurance.’’

Once they pay a few hundred dollars, Pearson says, patients start to abandon their medications.